Hemangioblastoma

Generally, people only develop one hemangioblastoma tumor. However, if you have a genetic disorder known as Von Hippel-Lindau (VHL) disease, then you’re predisposed to developing many tumors in your spine and brain over the course of your life.

Hemangioblastoma symptoms

Symptoms of a hemangioblastoma vary depending on the size and location of your tumor. Hemangioblastoma symptoms you may have:

• Difficulties with balance and coordination
• Weakness in your legs
• Loss of bowel or bladder control
• Loss of sensory abilities

Diagnosis of hemangioblastoma

Tests can confirm whether you have a hemangioblastoma. Your doctor may recommend hemangioblastoma tests such as:

• An angiogram, which shows the blood vessels that are connected to the tumor
• CT and MRI scans
• Ultrasounds

Find a hemangioblastoma specialist

If you suspect you have a hemangioblastoma, our online search tool can help you find a neuroscience specialist near you.

Hemangioblastoma treatment options

There are two common treatments for hemangioblastoma:

• Conventional brain surgery: Your surgeon will completely remove the hemangioblastoma, ensuring it won’t grow back or create additional growths.
• Stereotactic radiosurgery with Cyberknife^®: A concentrated dose of radiation is used to destroy the hemangioblastoma tumor. It’s usually performed as an outpatient procedure over the course of 6 months to a year. This may make sense if your hemangioblastoma tumor is located in an area that’s difficult to access using conventional surgery.

If you have Von Hippel-Lindau disease, you’ll likely need to be regularly monitored for new tumors.